What do you want to know? Investigating the information requirements of patient supporters

Wendy Moncur, Judith Masthoff, Ehud Reiter

Research output: Chapter in Book/Report/Conference proceedingConference contribution book

9 Citations (Scopus)

Abstract

There is a vast amount of data associated with any one patient. It is challenging for medical staff to understand all this data. It is even harder for a lay person, who may not even know what medical terms mean. The research project BabyTalk-Clan aims to create personalized summaries of data for a lay audience. It uses sensitive, highly-detailed clinical data relating to a patient. This includes medication given, test results, notes made by medical staff, and continuous physiological signals such as heart rate. We took a qualitative approach to knowledge acquisition for user requirements. Using interviews and a focus group within a Grounded Theory methodology, we discovered that most lay users want only a very high-level summary of the baby's state. What lay users do want is information about how the parents are coping, and what support they need. Findings were cross-validated through a questionnaire. ©2008 IEEE.
Original languageEnglish
Title of host publication2008 21st IEEE International Symposium on Computer-Based Medical Systems
PublisherIEEE
Number of pages6
ISBN (Print)9780769531656
DOIs
Publication statusPublished - Jun 2008
Event2008 21st IEEE International Symposium on Computer-Based Medical Systems - Jyvaskyla, Finland
Duration: 17 Jun 200819 Aug 2008

Conference

Conference2008 21st IEEE International Symposium on Computer-Based Medical Systems
CountryFinland
CityJyvaskyla
Period17/06/0819/08/08

Keywords

  • computer aided instruction
  • medical computing
  • knowledge acquisition

Fingerprint Dive into the research topics of 'What do you want to know? Investigating the information requirements of patient supporters'. Together they form a unique fingerprint.

  • Cite this

    Moncur, W., Masthoff, J., & Reiter, E. (2008). What do you want to know? Investigating the information requirements of patient supporters. In 2008 21st IEEE International Symposium on Computer-Based Medical Systems IEEE. https://doi.org/10.1109/cbms.2008.36