Unseen and invisible? Issues of recognition for parents with intellectual disabilities accessing social work and social care services for adults in England.

Beth Tarleton*, Gillian MacIntyre, Danielle Turney, Rhian Fawcett

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

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Abstract

Background
Parents in England with an intellectual disability may be eligible for support with parenting from Local Authority’s Adult services under the Care Act (2014).

Method
This study investigated how adult social workers support these parents through 18 interviews with managers and commissioners and focus groups with 52 social workers, analysed using thematic analysis.

Results
Parents with a diagnosed ‘intellectual disability’ accessed “gold standard of support” from intellectual disability teams. Parents with a milder or borderline intellectual disability accessed support from the ‘general’ team if they had two eligible needs under the Care Act. There were inclusive and more restrictive approaches, related to lack of resources and social worker knowledge and skills, to the recognition of two eligible needs.

Conclusions
Parents with milder intellectual disabilities are rendered invisible to services due to not having a ‘label’ or ‘obvious’ eligibility for support under the Care Act.
Original languageEnglish
Article numbere70075
JournalJournal of Applied Research in Intellectual Disabilities
Volume38
Issue number4
DOIs
Publication statusPublished - 3 Aug 2025

Funding

This work was supported by NIHR SSCR.

Keywords

  • parents with intellectual disabilities
  • intellectual disabilities
  • Care Act 2014
  • social care services

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