Researching experiences of terminal cancer: a systematic review of methodological issues and approaches

F. M. Harris, M. Kendall, A. Bentley, Roma Maguire, A. Worth, S. Murray, K. Boyd, D. Brown, N. Kearney, A. Sheikh

Research output: Contribution to journalReview article

12 Citations (Scopus)

Abstract

The objectives of this review were to assess the methods and approaches applied to end-of-life cancer research based on papers focusing on approaches or methodological issues related to seeking the views of people affected by terminal cancer. A comprehensive search of 10 databases (January 1980-February 2004) was undertaken. References were screened, quality assessed and data extracted by two reviewers. Analysis followed a meta-narrative approach. Fifteen papers were included. They discussed 'traditional' approaches, such as focus groups, interviews, surveys, as well as innovative approaches allied to the arts. They reveal that mixed methods are gaining popularity. The emotional demands placed on researchers and the ethical issues involved in this research area were also discussed. We concluded that researchers should embrace innovative approaches from other areas of social science, such as the use of arts-based techniques. This may facilitate recruitment of the hard-to-reach groups and engage with experiences that may be otherwise difficult to verbalize. Although researching the needs of the dying carries challenges, these are not the exclusive domain of the cancer field. This study reveals that diverse methods, from research-based drama to postal questionnaires, can enhance end-of-life research. However, this review reveals the need for more methodological work to be undertaken and disseminated.

Original languageEnglish
Pages (from-to)377-386
Number of pages10
JournalEuropean Journal of Cancer Care
Volume17
Issue number4
Early online date14 Jul 2008
DOIs
Publication statusPublished - 31 Jul 2008

Keywords

  • cancer
  • literature review
  • patient experience
  • research methods

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