Abstract
Advanced chronic kidney disease is a serious and common medical condition with significant treatment choices incurring varying levels of high treatment burden. Better understanding on how to best collect quality of life (QoL) in this unique situation may help guide critical decisions. This study investigates the acceptability of digital QoL questionnaires completed during routine haemodialysis sessions. Qualitative data was collected from patient (n=23) and clinical researcher (n=2) interviews alongside analysis of data from questionnaires completed by patients (n=101) during a 6-week validation study. Interviews refined the content and format of digital QoL questionnaires and pro-vided novel insights regarding how patients assessed and completed QoL questions. This study suggests collecting QoL data using digital tablet technology during routine haemodialysis clinics is both feasible and acceptable to patients and has provided novel insights that are not routinely available with traditional methods.
Original language | English |
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Number of pages | 5 |
Publication status | Published - 4 Oct 2021 |
Event | Medical Informatics 2021: One World, One Health: Global Partnership for Digital Innovation - Virtual conference Duration: 2 Oct 2021 → 4 Oct 2021 https://imia-medinfo.org/medinfo21/ |
Conference
Conference | Medical Informatics 2021 |
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Abbreviated title | MedInfo '21 |
Period | 2/10/21 → 4/10/21 |
Internet address |
Keywords
- advanced chronic kidney disease
- digital questionnaires
- quality of life measures