TY - JOUR
T1 - Patient empowerment for cancer patients through a novel ICT infrastructure
AU - Kondylakis, Haridimos
AU - Bucur, Anca
AU - Crico, Chiara
AU - Dong, Feng
AU - Graf, Norbert
AU - Hoffman, Stefan
AU - Koumakis, Lefteris
AU - Manenti, Alice
AU - Marias, Kostas
AU - Mazzocco, Ketti
AU - Pravettoni, Gabriella
AU - Renzi, Chiara
AU - Schera, Fatima
AU - Triberti, Stefano
AU - Tsiknakis, Manolis
AU - Kiefer, Stephan
PY - 2020/1/31
Y1 - 2020/1/31
N2 - As a result of recent advances in cancer research and "precision medicine" approaches, i.e. the idea of treating each patient with the right drug at the right time, more and more cancer patients are being cured, or might have to cope with a life with cancer. For many people, cancer survival today means living with a complex and chronic condition. Surviving and living with or beyond cancer requires the long-term management of the disease, leading to a significant need for active rehabilitation of the patients. In this paper, we present a novel methodology employed in the iManageCancer project for cancer patient empowerment in which personal health systems, serious games, psychoemotional monitoring and other novel decision-support tools are combined into an integrated patient empowerment platform. We present in detail the ICT infrastructure developed and our evaluation with the involvement of cancer patients on two sites, a large-scale pilot for adults and a small-scale test for children. The evaluation showed mixed evidences on the improvement of patient empowerment, while ability to cope with cancer, including improvement in mood and resilience to cancer, increased for the participants of the adults′ pilot.
AB - As a result of recent advances in cancer research and "precision medicine" approaches, i.e. the idea of treating each patient with the right drug at the right time, more and more cancer patients are being cured, or might have to cope with a life with cancer. For many people, cancer survival today means living with a complex and chronic condition. Surviving and living with or beyond cancer requires the long-term management of the disease, leading to a significant need for active rehabilitation of the patients. In this paper, we present a novel methodology employed in the iManageCancer project for cancer patient empowerment in which personal health systems, serious games, psychoemotional monitoring and other novel decision-support tools are combined into an integrated patient empowerment platform. We present in detail the ICT infrastructure developed and our evaluation with the involvement of cancer patients on two sites, a large-scale pilot for adults and a small-scale test for children. The evaluation showed mixed evidences on the improvement of patient empowerment, while ability to cope with cancer, including improvement in mood and resilience to cancer, increased for the participants of the adults′ pilot.
KW - cancer
KW - patient empowerment
KW - personal health system
KW - psychoemotional monitoring
U2 - 10.1016/j.jbi.2019.103342
DO - 10.1016/j.jbi.2019.103342
M3 - Article
SN - 1532-0464
VL - 101
JO - Journal of Biomedical Informatics
JF - Journal of Biomedical Informatics
M1 - 103342
ER -