Abstract
Language | English |
---|---|
Type | Clinical Guidelines |
Number of pages | 88 |
Place of Publication | London |
Edition | 3rd |
Publication status | Published - 31 Jul 2016 |
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Keywords
- ataxias
- public aspects of medicine
- clinical practice
- guidelines
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Management of the ataxias : towards best clinical practice. / Bates, Claire; Baxter, Peter; Bonney, Harriet; Bremner, Fion; Bunn, Lisa; Carrillo Perez-Tome, Maria; Chung, Mark; Cipolotti, Lisa; de Silva, Rajith; Duberley, Kate; Ealing, John; Emmanuel, Anton; Giunti, Paola; Greenfield, Julie; Hadjivassilliou, Marios; Harshavardhana, N.S.; Hayward, Kate; Hendriksz, Christian; Hersheson, Joshua; Horvath, Rita; Hurford, Joanne; Jaffer, Fatima; Kilbride, Cherry; Lowit, Anja; Marsden, Jonathan; Nemeth, Andrea; Noordeen, M H Hilali; Panicker, Jalesh; Pantazis, Antonios; Parkinson, Michael H; Redmond, Liz; Uus, Kai.
88 p. 3rd ed. London. 2016, Clinical Guidelines.Research output: Other contribution
TY - GEN
T1 - Management of the ataxias
T2 - towards best clinical practice
AU - Bates, Claire
AU - Baxter, Peter
AU - Bonney, Harriet
AU - Bremner, Fion
AU - Bunn, Lisa
AU - Carrillo Perez-Tome, Maria
AU - Chung, Mark
AU - Cipolotti, Lisa
AU - de Silva, Rajith
AU - Duberley, Kate
AU - Ealing, John
AU - Emmanuel, Anton
AU - Giunti, Paola
AU - Greenfield, Julie
AU - Hadjivassilliou, Marios
AU - Harshavardhana, N.S.
AU - Hayward, Kate
AU - Hendriksz, Christian
AU - Hersheson, Joshua
AU - Horvath, Rita
AU - Hurford, Joanne
AU - Jaffer, Fatima
AU - Kilbride, Cherry
AU - Lowit, Anja
AU - Marsden, Jonathan
AU - Nemeth, Andrea
AU - Noordeen, M H Hilali
AU - Panicker, Jalesh
AU - Pantazis, Antonios
AU - Parkinson, Michael H
AU - Redmond, Liz
AU - Uus, Kai
PY - 2016/7/31
Y1 - 2016/7/31
N2 - This document aims to provide recommendations for healthcare professionals on the diagnosis and management of people with progressive ataxia. The progressive ataxias are rare neurological conditions, and are often poorly understood by healthcare professionals. Diagnosis has generally been a long process because of the rarity and complexity of the different ataxias1. In addition, many healthcare professionals are unsure how best to manage the conditions and there is sometimes a feeling that little can be done for these patients1,2 Although there are no disease-modifying treatments for the majority of the progressive ataxias, there are many aspects of the conditions that are treatable and it is thus important that this is recognised by the relevant healthcare professionals. The diagnosis and management of the few treatable causes is also of paramount importance. All this highlights the importance of producing these guidelines: in order to increase awareness and understanding of these conditions, and lead to their improved diagnosis and management. With new developments in genetic technologies and the discovery of more genes, diagnosis is improving and has great scope to continue to do so. In addition, research is advancing and many human trials to test medications are taking place, making us more optimistic that disease-modifying treatments will be found for the progressive ataxias.
AB - This document aims to provide recommendations for healthcare professionals on the diagnosis and management of people with progressive ataxia. The progressive ataxias are rare neurological conditions, and are often poorly understood by healthcare professionals. Diagnosis has generally been a long process because of the rarity and complexity of the different ataxias1. In addition, many healthcare professionals are unsure how best to manage the conditions and there is sometimes a feeling that little can be done for these patients1,2 Although there are no disease-modifying treatments for the majority of the progressive ataxias, there are many aspects of the conditions that are treatable and it is thus important that this is recognised by the relevant healthcare professionals. The diagnosis and management of the few treatable causes is also of paramount importance. All this highlights the importance of producing these guidelines: in order to increase awareness and understanding of these conditions, and lead to their improved diagnosis and management. With new developments in genetic technologies and the discovery of more genes, diagnosis is improving and has great scope to continue to do so. In addition, research is advancing and many human trials to test medications are taking place, making us more optimistic that disease-modifying treatments will be found for the progressive ataxias.
KW - ataxias
KW - public aspects of medicine
KW - clinical practice
KW - guidelines
UR - https://www.ataxia.org.uk/clinical-guidelines
M3 - Other contribution
CY - London
ER -