Lessons from expert focus groups on how to better support adults with mild intellectual disabilities to engage in co-design

Ryan Colin Gibson; Mark D. Dunlop; Matt-Mouley Bouamrane

doi:10.1145/3373625.3417008

Lessons from expert focus groups on how to better support adults with mild intellectual disabilities to engage in co-design

Ryan Colin Gibson, Mark D. Dunlop, Matt-Mouley Bouamrane

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution book

20 Citations (Scopus)

160 Downloads (Pure)

Abstract

Co-design techniques generally rely upon higher-order cognitive skills, such as abstraction and creativity, meaning they may be inaccessible to people with intellectual disabilities (ID). Consequently, investigators must adjust the methods employed throughout their studies to ensure the complex needs of people with ID are appropriately catered to. Yet, there are a lack of guidelines to support researchers in this process, with previous literature often neglecting to discuss the decisions made during the development of their study protocols. We propose a new procedure to overcome this lack of support, by utilizing the knowledge of “experts” in ID to design a more accessible workshop for the target population. 12 experts across two focus groups were successful in identifying accessibility barriers throughout a set of typical early co-design activities. Recommendations to overcome these barriers are discussed along with lessons on how to better support people with ID to engage in co-design.

Original language	English
Title of host publication	ASSETS '20 : The 22nd International ACM SIGACCESS Conference on Computers and Accessibility
Place of Publication	New York, NY.
Number of pages	20
DOIs	https://doi.org/10.1145/3373625.3417008
Publication status	Published - 26 Oct 2020
Event	The 22nd International ACM SIGACCESS Conference on Computers and Accessibility - Athens, Greece Duration: 26 Oct 2020 → 28 Oct 2020 Conference number: 22nd

Conference

Conference	The 22nd International ACM SIGACCESS Conference on Computers and Accessibility
Abbreviated title	ASSETS 2020
Country/Territory	Greece
City	Athens
Period	26/10/20 → 28/10/20

Keywords

intellectual disabilities
co-design
accessibility
alternative and augmentative communication
primary care

Access to Document

10.1145/3373625.3417008

Gibson-etal-ASSETS-2020-Lessons-from-expert-focus-groups-on-how-to-betterAccepted author manuscript, 689 KB

1 Finished

Multimodal Digital Communication Aids to Support Adults with Mild Learning Disabilities during Medical Consultations - PhD
Gibson, R. C. (Principal Investigator)
1/11/18 → 1/11/20
Project: Research - Studentship

Patients with Mild Intellectual Disabilities Views of a Tablet Application to Support them During Primary Care Consultations: Post-Task Walkthroughs
Gibson, R. C. (Creator) & Dunlop, M. (Supervisor), University of Strathclyde, 10 Dec 2020
DOI: 10.15129/71f05a5d-076a-44d2-9b6e-8f140129bb5c
Dataset
Exploring the Views of Patients with Mild Intellectual Disabilities on the Barriers to Primary Care Consultations: A Framework Analysis
Gibson, R. C. (Creator) & Dunlop, M. (Supervisor), University of Strathclyde, 10 Dec 2020
DOI: 10.15129/94ca80dd-5896-4095-a56f-44ef2caf4f09
Dataset
Identifying Appropriate Research Methods to Embed within a Design Workshop Involving Adults with Mild Learning Disabilities.
Gibson, R. C. (Creator), University of Strathclyde, 20 Jun 2019
DOI: 10.15129/76f97730-a5fa-49da-973f-995373cee7ad
Dataset

20 Citations
1 Conference contribution book
1 Paper

Designing clinical AAC tablet applications with adults who have mild intellectual disabilities
Gibson, R. C., Dunlop, M. D., Bouamrane, M.-M. & Nayar, R., 30 Apr 2020, CHI '20 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. New York, NY., p. 1-13 13 p. 3376159
Research output: Chapter in Book/Report/Conference proceeding › Conference contribution book

Open Access
File
16 Citations (Scopus)

103 Downloads (Pure)
Experts views on the use of mobile devices to support patients with mild learning disabilities during clinical consultations
Gibson, R. C., Bouamrane, M.-M. & Dunlop, M., 25 Aug 2019. 5 p.
Research output: Contribution to conference › Paper › peer-review

Open Access
File

1 Participation in conference

The 22nd International ACM SIGACCESS Conference on Computers and Accessibility
Gibson, R. C. (Participant)
26 Oct 2020 → 28 Oct 2020
Activity: Participating in or organising an event types › Participation in conference

Cite this

@inproceedings{d145d2f38aa340668fe31c654c68d9dd,

title = "Lessons from expert focus groups on how to better support adults with mild intellectual disabilities to engage in co-design",

abstract = "Co-design techniques generally rely upon higher-order cognitive skills, such as abstraction and creativity, meaning they may be inaccessible to people with intellectual disabilities (ID). Consequently, investigators must adjust the methods employed throughout their studies to ensure the complex needs of people with ID are appropriately catered to. Yet, there are a lack of guidelines to support researchers in this process, with previous literature often neglecting to discuss the decisions made during the development of their study protocols. We propose a new procedure to overcome this lack of support, by utilizing the knowledge of “experts” in ID to design a more accessible workshop for the target population. 12 experts across two focus groups were successful in identifying accessibility barriers throughout a set of typical early co-design activities. Recommendations to overcome these barriers are discussed along with lessons on how to better support people with ID to engage in co-design. ",

keywords = "intellectual disabilities, co-design, accessibility, alternative and augmentative communication, primary care",

author = "Gibson, {Ryan Colin} and Dunlop, {Mark D.} and Matt-Mouley Bouamrane",

year = "2020",

month = oct,

day = "26",

doi = "10.1145/3373625.3417008",

language = "English",

isbn = "9781450371032",

booktitle = "ASSETS '20 : The 22nd International ACM SIGACCESS Conference on Computers and Accessibility",

note = "The 22nd International ACM SIGACCESS Conference on Computers and Accessibility, ASSETS 2020 ; Conference date: 26-10-2020 Through 28-10-2020",

}

Gibson, RC , Dunlop, MD & Bouamrane, M-M 2020, Lessons from expert focus groups on how to better support adults with mild intellectual disabilities to engage in co-design. in ASSETS '20 : The 22nd International ACM SIGACCESS Conference on Computers and Accessibility., 48, New York, NY., The 22nd International ACM SIGACCESS Conference on Computers and Accessibility, Athens, Greece, 26/10/20. https://doi.org/10.1145/3373625.3417008

Lessons from expert focus groups on how to better support adults with mild intellectual disabilities to engage in co-design. / Gibson, Ryan Colin ; Dunlop, Mark D.; Bouamrane, Matt-Mouley.
ASSETS '20 : The 22nd International ACM SIGACCESS Conference on Computers and Accessibility. New York, NY., 2020. 48.

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution book

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T1 - Lessons from expert focus groups on how to better support adults with mild intellectual disabilities to engage in co-design

AU - Gibson, Ryan Colin

AU - Dunlop, Mark D.

AU - Bouamrane, Matt-Mouley

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PY - 2020/10/26

Y1 - 2020/10/26

N2 - Co-design techniques generally rely upon higher-order cognitive skills, such as abstraction and creativity, meaning they may be inaccessible to people with intellectual disabilities (ID). Consequently, investigators must adjust the methods employed throughout their studies to ensure the complex needs of people with ID are appropriately catered to. Yet, there are a lack of guidelines to support researchers in this process, with previous literature often neglecting to discuss the decisions made during the development of their study protocols. We propose a new procedure to overcome this lack of support, by utilizing the knowledge of “experts” in ID to design a more accessible workshop for the target population. 12 experts across two focus groups were successful in identifying accessibility barriers throughout a set of typical early co-design activities. Recommendations to overcome these barriers are discussed along with lessons on how to better support people with ID to engage in co-design.

AB - Co-design techniques generally rely upon higher-order cognitive skills, such as abstraction and creativity, meaning they may be inaccessible to people with intellectual disabilities (ID). Consequently, investigators must adjust the methods employed throughout their studies to ensure the complex needs of people with ID are appropriately catered to. Yet, there are a lack of guidelines to support researchers in this process, with previous literature often neglecting to discuss the decisions made during the development of their study protocols. We propose a new procedure to overcome this lack of support, by utilizing the knowledge of “experts” in ID to design a more accessible workshop for the target population. 12 experts across two focus groups were successful in identifying accessibility barriers throughout a set of typical early co-design activities. Recommendations to overcome these barriers are discussed along with lessons on how to better support people with ID to engage in co-design.

KW - intellectual disabilities

KW - co-design

KW - accessibility

KW - alternative and augmentative communication

KW - primary care

U2 - 10.1145/3373625.3417008

DO - 10.1145/3373625.3417008

M3 - Conference contribution book

SN - 9781450371032

BT - ASSETS '20 : The 22nd International ACM SIGACCESS Conference on Computers and Accessibility

CY - New York, NY.

T2 - The 22nd International ACM SIGACCESS Conference on Computers and Accessibility

Y2 - 26 October 2020 through 28 October 2020

ER -

Lessons from expert focus groups on how to better support adults with mild intellectual disabilities to engage in co-design

Abstract

Conference

Keywords

Access to Document

Fingerprint

Projects

Multimodal Digital Communication Aids to Support Adults with Mild Learning Disabilities during Medical Consultations - PhD

Datasets

Patients with Mild Intellectual Disabilities Views of a Tablet Application to Support them During Primary Care Consultations: Post-Task Walkthroughs

Exploring the Views of Patients with Mild Intellectual Disabilities on the Barriers to Primary Care Consultations: A Framework Analysis

Identifying Appropriate Research Methods to Embed within a Design Workshop Involving Adults with Mild Learning Disabilities.

Research output

Designing clinical AAC tablet applications with adults who have mild intellectual disabilities

Experts views on the use of mobile devices to support patients with mild learning disabilities during clinical consultations

Activities

The 22nd International ACM SIGACCESS Conference on Computers and Accessibility

Cite this