Keys to their own voices: social tags for a dementia ontology as a human right

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

Dementia encompasses a range of incurable brain conditions such as Alzheimer’s disease, which affected 47 million people worldwide in 2015, a figure that is expected to triple by 2050. It is therefore a worldwide public health priority (World Health Organization, 2017). While the symptoms differ among individuals to some extent, the World Health Organization (WHO) defines them as follows: difficulties with everyday tasks; confusion in familiar environments; difficulty with words and numbers; memory loss; changes in mood and behaviour. Caring for people living with dementia (PLWD) is a burdensome task and it tends to fall to family members, which causes them considerable stress. The WHO’s Global Action Plan on the Public Health Response to Dementia 2017–2025 focuses on dementia prevention as well as on improving the lives of PLWD and their carers so that they ‘live well and receive the care and support they need to fulfil their potential with dignity, respect, autonomy and equality’. The United Nations has called for dementia to be a public health priority in all countries (UN News Centre, 2015).

This chapter will first explore the uniquely challenging context of information needs and dementia. It will then use dementia as a case study to demonstrate how user-generated hashtags, or other forms of surrogate representation, could be applied in a linked data environment in order to improve access to care, resources, people and other needs.
LanguageEnglish
Title of host publicationSocial Tagging for Linked Data Across Environments
Subtitle of host publicationA New Approach to Discovering Information Online
EditorsLouise Spiteri, Diane Pennington
Place of PublicationLondon
Publication statusPublished - 30 Sep 2018

Fingerprint

dementia
ontology
human rights
WHO
public health
UNO
action plan
mood
family member
equality
respect
brain
news
autonomy
cause
resources

Keywords

  • social tags
  • dementia
  • own voices
  • Alzheimer's
  • ontologies
  • Linked Data

Cite this

Rasmussen Pennington, D. (2018). Keys to their own voices: social tags for a dementia ontology as a human right. In L. Spiteri, & D. Pennington (Eds.), Social Tagging for Linked Data Across Environments: A New Approach to Discovering Information Online London.
Rasmussen Pennington, Diane. / Keys to their own voices : social tags for a dementia ontology as a human right. Social Tagging for Linked Data Across Environments: A New Approach to Discovering Information Online. editor / Louise Spiteri ; Diane Pennington. London, 2018.
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note = "This is a preprint of a chapter accepted for publication by Facet Publishing. This extract has been taken from the author's original manuscript and has not been edited. The definitive version of this piece may be found in Rasmussen Pennington, D. (2018). Keys to their own voices: social tags for a dementia ontology as a human right. In L. Spiteri, & D. Pennington (Eds.), Social Tagging for Linked Data Across Environments: A New Approach to Discovering Information Online London: Facet Publishing; ISBN: 9781783303380. which can be purchased from http://facetpublishing.co.uk/title.php?id=303380. The author agrees not to update the preprint or replace it with the published version of the chapter. Our titles have wide appeal across the UK and internationally and we are keen to see our authors content translated into foreign languages and welcome requests from publishers. World rights for translation are available for many of our titles. To date our books have been translated into over 25 languages.",
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Rasmussen Pennington, D 2018, Keys to their own voices: social tags for a dementia ontology as a human right. in L Spiteri & D Pennington (eds), Social Tagging for Linked Data Across Environments: A New Approach to Discovering Information Online. London.

Keys to their own voices : social tags for a dementia ontology as a human right. / Rasmussen Pennington, Diane.

Social Tagging for Linked Data Across Environments: A New Approach to Discovering Information Online. ed. / Louise Spiteri; Diane Pennington. London, 2018.

Research output: Chapter in Book/Report/Conference proceedingChapter

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Rasmussen Pennington D. Keys to their own voices: social tags for a dementia ontology as a human right. In Spiteri L, Pennington D, editors, Social Tagging for Linked Data Across Environments: A New Approach to Discovering Information Online. London. 2018