Involving health professionals in the development of an advanced symptom management system for young people: the ASyMS©-YG study

F. Gibson, S. Aldiss, R. M. Taylor, Roma Maguire, N. Kearney

Research output: Contribution to journalArticle

28 Citations (Scopus)

Abstract

Purpose of the study: ASyMS© is an advanced symptom management system utilising mobile phone technology for patients to report cancer chemotherapy-related symptoms. The aim of this paper is to present health professionals involvement in the development of ASyMS© for use with young people (YG) and evaluate their perceptions of the system. Stage 1: Health professionals reviewed the symptoms chosen by young people to be included on the personal digital assistant questionnaire to confirm they would have universal relevance. These included: mouth sores, nausea, diarrhoea, vomiting and weight loss. Stage 2: Health professionals completed a questionnaire prior to the study commencing, which suggested they felt ASyMS©-YG would give young people control and facilitate timely interventions when symptoms occur. Post-study perceptions were sought through semi-structured interviews and consultation sessions with 23 health professionals. These showed two over-arching themes: young people's symptoms and perceptions of ASyMS©-YG; and six sub-themes: increased control for young people; enhances communication between young people and health professionals; and helps with professional early intervention; increased support for young people; improve knowledge and understanding; technology appealing to young people. Conclusions: This early development work indicates that ASyMS©-YG is acceptable to health professionals and their perceptions of the system were overall very positive. Health professionals will continue to be involved in the study through developing self-care guidelines and alert system, which will be tested in an exploratory trial (stage 3) and randomised controlled trial (stage 4) in the future.

LanguageEnglish
Pages187-192
Number of pages6
JournalEuropean Journal of Oncology Nursing
Volume13
Issue number3
Early online date5 May 2009
DOIs
Publication statusPublished - 31 Jul 2009

Fingerprint

Health
Handheld Computers
Technology
Cell Phones
Self Care
Nausea
Vomiting
Mouth
Weight Loss
Diarrhea
Referral and Consultation
Randomized Controlled Trials
Communication
Guidelines
Interviews
Drug Therapy
Neoplasms
Surveys and Questionnaires

Keywords

  • chemotherapy
  • information technology
  • self-care
  • symptom management
  • young people

Cite this

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abstract = "Purpose of the study: ASyMS{\circledC} is an advanced symptom management system utilising mobile phone technology for patients to report cancer chemotherapy-related symptoms. The aim of this paper is to present health professionals involvement in the development of ASyMS{\circledC} for use with young people (YG) and evaluate their perceptions of the system. Stage 1: Health professionals reviewed the symptoms chosen by young people to be included on the personal digital assistant questionnaire to confirm they would have universal relevance. These included: mouth sores, nausea, diarrhoea, vomiting and weight loss. Stage 2: Health professionals completed a questionnaire prior to the study commencing, which suggested they felt ASyMS{\circledC}-YG would give young people control and facilitate timely interventions when symptoms occur. Post-study perceptions were sought through semi-structured interviews and consultation sessions with 23 health professionals. These showed two over-arching themes: young people's symptoms and perceptions of ASyMS{\circledC}-YG; and six sub-themes: increased control for young people; enhances communication between young people and health professionals; and helps with professional early intervention; increased support for young people; improve knowledge and understanding; technology appealing to young people. Conclusions: This early development work indicates that ASyMS{\circledC}-YG is acceptable to health professionals and their perceptions of the system were overall very positive. Health professionals will continue to be involved in the study through developing self-care guidelines and alert system, which will be tested in an exploratory trial (stage 3) and randomised controlled trial (stage 4) in the future.",
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Involving health professionals in the development of an advanced symptom management system for young people : the ASyMS©-YG study. / Gibson, F.; Aldiss, S.; Taylor, R. M.; Maguire, Roma; Kearney, N.

In: European Journal of Oncology Nursing, Vol. 13, No. 3, 31.07.2009, p. 187-192.

Research output: Contribution to journalArticle

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