'Dignity and respect': an example of service user leadership and co‐production in mental health research

Alison Faulkner, Sarah Carr, Dorothy Gould, Christine Khisa, Trish Hafford-Letchfield, Rachel Cohen, Claudia Megele, Jessica Holley

Research output: Contribution to journalArticlepeer-review

3 Citations (Scopus)
22 Downloads (Pure)


This paper explores the methodological aspects of a user‐led study investigating
mental health service user experiences of targeted violence and abuse (often called 'hate crime'). 'Keeping Control' was a 16‐month qualitative study, undertaken in the context of adult safeguarding reforms in England. By collecting data on service user concepts and experiences, the research sought to address a gap in research and practice knowledge relating to targeted violence, abuse and hostility against people with mental health problems. In this paper, we discuss the significance of the design and methodology used for this study, with a particular focus on the interviews with service users. The research was both user‐led and carried out in collaboration with practitioners and academics, a form of research co‐production. Our aim is to inform researchers, practitioners and policymakers about the value of user leadership in co‐productive research with practitioners, particularly for a highly sensitive and potentially distressing topic.
Original languageEnglish
Pages (from-to)1-10
Number of pages10
JournalHealth Expectations
Early online date26 Sep 2019
Publication statusE-pub ahead of print - 26 Sep 2019


  • adult safeguarding
  • co-production
  • mental health research
  • mental health service users
  • survivor research
  • user-led research


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