Digital vs paper data collection: benefits for in-hospital haemodialysis patients

Ramsay Meiklem, Karen Stevenson, Sabine Richarz, David B. Kingsmore, Matt-Mouley Bouamrane, Mark Dunlop, Peter Thomson

Research output: Contribution to conferencePosterpeer-review

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Patients on haemodialysis (HD) face complex care pathways, high treatment burden and reduced quality-of-life. A reliable method of assessing and collecting patient-related outcome measures (PROMs) has proven difficult. We asked what the benefits and disadvantages of digital data collection over paper with this population are. Working with multidisciplinary domain experts in the NHS Greater Glasgow and Clyde health board (Scotland) over several iterative development cycles we designed, developed, and evaluate a system with HD patients. A case study was conducted with multidisciplinary experts and patients, using interviews (n=20) combined with the System Usability Scale (n=26). Patients' feedback and system use observations were used to further refine the system design requirements and functionalities. A wide preference for tablet-based input vs paper was noted and self-completed digital data collection overcame situational impairment and promoted patient independence and privacy. Perceived value must be maintained to secure engagement and conventional alternatives offered where appropriate.
Original languageEnglish
Number of pages1
Publication statusPublished - 13 Sep 2021
EventSICSA Conference 2021: Sustainability and Resilience - University of Dundee (virtual), Dundee, United Kingdom
Duration: 13 Sep 202114 Sep 2021


ConferenceSICSA Conference 2021
Country/TerritoryUnited Kingdom
Internet address


  • digital data collection
  • data collection
  • patient independence
  • patient engagement


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