Abstract
Background
Embedding patient reported outcome measures (PROMs) into routine cancer care can help monitor treatment impact on quality of life, inform decisions, and transform care pathways. Although firmly positioned within the Scottish cancer strategy, PROMs are not part of routine care.
The Scottish Government (SG) funded Cancer Medicines Outcomes Programme (CMOP) supported the establishment of the Scottish Cancer PROMs Advisory Group (SC-PROMs AG) to provide strategic leadership in a ‘once for Scotland’ approach to cancer PROMs in clinical practice. One objective is to have a set of Core Principles; guidelines for clinical teams or digital providers on how to integrate PROMs into care pathways and digital systems.
Core Principles Development
Eight Core Principles were developed by the SC-PROMS AG. Three were presented to an audience for consideration at the SC-PROMs Forum online event focusing on: what PROMs are appropriate; PROMs integration; and accessibility and inclusivity.
Seventy-one people attended, mostly representing healthcare, academia, third sector, digital companies, patients/public and government. Learning included: alongside standardisation is a need for person-centredness and flexibility; clinical teams need clear and relevant objectives for how/why they will use PROMs; collaboration at all stages is vital; and long-term upfront investment is crucial.
Next Steps
The Core Principles will be refined and presented for agreement and endorsement by SG. Subsequently, they will inform and shape how we progress PROMS as part of routine cancer care in Scotland. The opportunity is for PROMs data to be routinely collected to support cancer medicines intelligence and individual patient care.
Embedding patient reported outcome measures (PROMs) into routine cancer care can help monitor treatment impact on quality of life, inform decisions, and transform care pathways. Although firmly positioned within the Scottish cancer strategy, PROMs are not part of routine care.
The Scottish Government (SG) funded Cancer Medicines Outcomes Programme (CMOP) supported the establishment of the Scottish Cancer PROMs Advisory Group (SC-PROMs AG) to provide strategic leadership in a ‘once for Scotland’ approach to cancer PROMs in clinical practice. One objective is to have a set of Core Principles; guidelines for clinical teams or digital providers on how to integrate PROMs into care pathways and digital systems.
Core Principles Development
Eight Core Principles were developed by the SC-PROMS AG. Three were presented to an audience for consideration at the SC-PROMs Forum online event focusing on: what PROMs are appropriate; PROMs integration; and accessibility and inclusivity.
Seventy-one people attended, mostly representing healthcare, academia, third sector, digital companies, patients/public and government. Learning included: alongside standardisation is a need for person-centredness and flexibility; clinical teams need clear and relevant objectives for how/why they will use PROMs; collaboration at all stages is vital; and long-term upfront investment is crucial.
Next Steps
The Core Principles will be refined and presented for agreement and endorsement by SG. Subsequently, they will inform and shape how we progress PROMS as part of routine cancer care in Scotland. The opportunity is for PROMs data to be routinely collected to support cancer medicines intelligence and individual patient care.
| Original language | English |
|---|---|
| Number of pages | 1 |
| Publication status | Published - 27 Jun 2023 |
| Event | EuroDURG 2023: European Drug Utilisation Research Group conference - Bologna, Italy Duration: 27 Jun 2023 → 30 Jun 2023 |
Conference
| Conference | EuroDURG 2023 |
|---|---|
| Country/Territory | Italy |
| City | Bologna |
| Period | 27/06/23 → 30/06/23 |
Keywords
- PROMs
- routine cancer care
- treatment monitoring
- cancer care in Scotland
- digtal health care
