Co-creation facilitates translational research on upper limb prosthetics

Hannah Jones, Sigrid Dupan, Maxford Coutinho, Sarah Day, Deirdre Desmond, Margaret Donovan-Hall, Matthew Dyson, Thea Ekins-Coward, Laurence Kenney, Agamemnon Krasoulis, Doug McIntosh, Kaveh Memarzadeh, Edward Small, Gemma Wheeler, Hancong Wu, Kianoush Nazarpour

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Abstract

People who either use an upper limb prosthesis and/or have used services provided by a prosthetic rehabilitation centre, hereafter called users, are yet to benefit from the fast-paced growth in academic knowledge within the field of upper limb prosthetics. Crucially over the past decade, research has acknowledged the limitations of conducting laboratory-based studies for clinical translation. This has led to an increase, albeit rather small, in trials that gather real-world user data. Multi-stakeholder collaboration is critical within such trials, especially between researchers, users, and clinicians, as well as policy makers, charity representatives, and industry specialists. This paper presents a co-creation model that enables researchers to collaborate with multiple stakeholders, including users, throughout the duration of a study. This approach can lead to a transition in defining the roles of stakeholders, such as users, from participants to co-researchers. This presents a scenario whereby the boundaries between research and participation become blurred and ethical considerations may become complex. However, the time and resources that are required to conduct co-creation within academia can lead to greater impact and benefit the people that the research aims to serve.
Original languageEnglish
Pages (from-to)110-118
Number of pages9
JournalProsthesis
Volume3
Issue number2
DOIs
Publication statusPublished - 2 Apr 2021

Keywords

  • co-creation
  • collaboration
  • user needs
  • upper limb prosthetics

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  • Co-creation and user perspectives for upper limb prosthetics

    Jones, H., Dupan, S., Dyson, M., Krasoulis, A., Kenney, L., Donovan-Hall, M., Memarzadeh, K., Day, S., Coutinho, M. & Nazarpour, K., 9 Jul 2021, In: Frontiers in Neurorobotics . 15, 91 p., 689717.

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