A survey of disabled children and young people's views about their quality of life

Janet Sylvester, Nigel Donnell, Shelley Gray, Kate Higgins, Kirsten Stalker

    Research output: Contribution to journalArticle

    12 Citations (Scopus)

    Abstract

    This study aimed to explore disabled children and young people's perspectives about their quality of life, in terms of physical, mental and social well-being. Ninety-one disabled children, recruited through voluntary organisations in Scotland, completed KIDSCREEN-27, a validated measure of health-related quality of life for children. Findings were compared with those from a European study of pre-dominantly non-disabled children. The children gave largely positive reports about school, family relationships and their physical health. However, one in three reported often feeling 'sad' and many were excluded from social activities with their peers. Expectations of achieving academic qualifications, and moving into further or higher education, were generally low. The children's perceived quality of life was lower than their European counterparts', less so in relation to school but particularly for friendships and peer support. The findings are discussed in the light of the social relational understanding of disability. Policy and practice implications are identified.
    Original languageEnglish
    Number of pages27
    JournalDisability and Society
    Early online date12 Dec 2013
    DOIs
    Publication statusPublished - Dec 2013

    Keywords

    • quality of life
    • QOL
    • disabled children
    • social relational understanding of disability
    • disabled children and young people
    • survey
    • children’s views

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